Social media posts misrepresent Alzheimer's blood test recommendations

We know people turn to social media for health information. When content leaves out important context about who these tests are for, their limitations and potential downsides, there's a risk people may develop unrealistic expectations or seek testing that isn't recommended for them." Dr. Jenna Smith, University of Sydney's School of Public HealthSocial media is presenting exciting claims about what these new blood tests might be able to do, but that excitement can outpace the evidence.

The blood tests are intended to support diagnosis of Alzheimer's disease in people experiencing cognitive decline. The researchers found 59 percent of posts promoted the tests as useful for earlier or improved diagnosis, however many failed to mention that clinical assessment remains essential or that the tests are only recommended for people experiencing symptoms.

Dr Smith said the omission of important information was concerning given the potential consequences of testing people who are otherwise healthy. The study found posts discussing testing for healthy people rarely mentioned potential harms, such as overdiagnosis, false positive results or the broader impacts an Alzheimer's diagnosis can have on individuals and families.

"A positive result may create anxiety and uncertainty, particularly when there is no cure for Alzheimer's disease and guidance on how these new tests should be used is still evolving.

"People with no symptoms could be diagnosed with Alzheimer's disease but not go on to develop dementia that impacts their life."

"It's important that consumers are getting balanced information rather than relying on social media alone. Posts should always include advice to speak with a health professional before undertaking any Alzheimer's blood testing."

Source:

University of Sydney

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