DSI launches new strategy on supports and jobs inclusion

Down Syndrome Ireland (DSI) is set to launch its new strategy as events take place across the country to mark World Down Syndrome Day.

The strategy is expected to set out a roadmap for measures the charity has said will improve early intervention supports and strengthen inclusive employment pathways for people with Down syndrome.

DSI has said its new strategy reflects extensive consultation with its members nationwide and will position lived experience as a driver for national advocacy.

It comes as members of DSI's National Advisory Council (NAC) recently presented Taoiseach Micheál Martin with the "core pillars" of its new national strategy.

The NAC is a panel of adults with Down syndrome who formally advise DSI on advocacy positions and policy priorities.

They have said that their message to Government is that "decisions that affect people with Down syndrome must be shaped by people with Down syndrome."

The members of panel also said that the tangible barriers facing people with Down syndrome in Ireland today, include inconsistent access to therapies, unreliable and inaccessible public transport, limited pathways to independent living, and the need for clearer transition planning from school into adulthood.

A recent report from DSI also found there is a severe lack of suitable special classes in primary and post primary level for children with Down syndrome, who do not have a dual diagnosis of autism.

Aidan Stacey, CEO of Down Syndrome Ireland, has said: "When national leaders sit down directly with adults who are navigating these systems every day, the conversation changes.

"This is about practical barriers - transport that determines whether someone can work, therapies that shape long-term health outcomes, and planning that determines independence.

"Our National Advisory Council ensures those realities are heard clearly and consistently at the highest level, Mr Stacey added.

Meanwhile, the Chairperson of Down Syndrome Kilkenny, Sean Manicle has said: "The support shown by public representatives from all parties has been deeply valued. But families now need more than understanding. They need action.

"For example, our branch is continuing to advocate strongly for the appointment of a full-time speech and language therapist in Kilkenny to meet the very real need that exists locally."

World Down Syndrome Day is observed annually on 21 March and has been officially recognised by the United Nations since 2012.

It takes place on the 21st day of the third month as a representation of the extra copy of the triplication (trisomy) of the 21st chromosome that people with Down syndrome are born with.

'Lots of Socks’ is DSI’s national fundraising campaign to mark World Down Syndrome Day each year while a series of other fundraising events are also set to take place across the country today.

The not-for-profit organisation has over 3,500 members across 25 branches nationwide.